My Book for Charity

Hi Blog Readers,

I'm down to the wire and in urgency mode... as you know, I have written a book on How a Neurological Disorder Changed my Life for the Better and am doing a campaign to attract readers and publishers...(which is now in the final 20 days).

The more books sold, the more publishers I will be pitched to... I'm shooting for 200 books sold. I'm at 27.

PLEASE (if you are able) click on this link and preorder a copy Thank you Patrick Bohan

https://www.publishizer.com/how-a-neurological-disorder-changed-my-life-for-the-better/

Remember, all profits will go to the Foundation for Peripheral Neuropathy. Thank you to all that have contributed.

How a Neurological Disorder Changed my Life for the Better

I am proud to announce that pre-orders for my book are now available at:

https://publishizer.com/how-a-neurological-disorder-changed-my-life-for-the-better/

Single book sales are discounted at $20 and you can be kept updated with the progress of the book by subscribing to the above website.

I am also proud to announce that I am partnering with the charity The Foundation for Peripheral Neuropathy. All book profits will go to their cause. Their website can be found at:

https://www.foundationforpn.org/

Below is a link to a brief summary of “My Story” published by The Foundation for Peripheral Neuropathy:

https://www.foundationforpn.org/2020/07/20/patrick-bohan-my-story/?blm_aid=1058487299

The Guillain-Barre Syndrome (GBS) and Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) Foundation International is also publishing “My Story” at a later date and their website is at:

https://www.gbs-cidp.org/

I have Multifocal Motor Neuropathy (MMN) and that is a very rare subset of peripheral neuropathy and GBS and CIDP types of neuropathy.

These are very good causes and I hope you are willing to join me to fight these illnesses that inflict millions of Americans and people around the globe.

How a Neurological Disorder Changed my Life for the Better

Pre-orders for my new book will be at www.publishizer.com from August 1 to August 31 and ALL proceeds will go to charity. There will be a lot of bonuses and free offers to pre-order books. I hope to complete the book by early next year. Below is information on the book:

How a Neurological Disorder Changed my Life for the Better: The Science behind Nerve, Muscular, and Neuromuscular Disorders and their Effects on Cycling

I achieved athletic success with a debilitating neurological condition for three reasons. First, training techniques can alter muscle protein composition overcoming physical limitations. Second, training can bypass diseased cells by creating alternate neural pathways for the brain and muscles to communicate. Finally, improving personality traits such as resiliency, grit, and mental toughness can help overcome physical limitations such as pain.

Synopsis

The good news is people are living longer, the bad news is people are suffering from higher rates of morbidity. Further complicating matters is that the medical community treats the symptoms and not the illness allowing people to live longer but the quality of life is reduced. Most reasons for morbidity are because our genes are being exposed to environments that they never experienced during the evolution process such as certain prescription drugs, less sleep, alcohol uses, smoking, exposure to toxins, stress, new illnesses, and certain foods. The result is disease and, in many cases, autoimmune disorders. In fact, according to Daniel Lieberman there is a good chance you will die from a disease caused by genetic mismatches with environmental factors. To put matters in perspective, according to the CDC there are about 600 rare diseases and the prevalence rate all 600 diseases in the United States alone is over 10%. What's worse, if all diseases are taken into account about 25 to 33% of the United States is sick or will be sick in the next few years. That is extraordinary because many disorders can be avoided through a well-balanced diet and exercise. If you have been suffering from disease and illness such as chronic pain then may be interested in this book.

This book explains my story and philosophy to cope with two chronic debilitating neurological conditions while competing in cycling. What's more, after 13 years of testing and visiting 9 neurologist I have been misdiagnosed several times and they are still uncertain about my current diagnosis. Thus, it is possible that I have something that is completely unique and science has yet to catch up with my disorder. The important facets of my story are acceptance, advocacy, adaptation, and attitude (AAAA). Although Peripheral Nerve Hyper-excitation (PNH) and neuropathy disorders can be debilitating and wreak-havoc on the lives of those inflicted, it is still possible to have a productive, successful, and meaningful life. Furthermore, without practicing AAAA, instead of winning races I would be requiring assistance to walk and to do other everyday functions. Although gene expression and adaptation for exercise and diet are unique to each individual, 99.9% of all people obtain some benefits. This novel book educates the public about my experiences and what I learned from my medical and cycling journey about a plethora of subjects including anatomy, epidemiology, physiology, neuromuscular disease, environmental factors, pain, fear, stress, depression, acceptance, adaptation, mental toughness, competition, diet, and endurance training to name a few. The bottom line is that not only is vigorous exercise achievable but so too is athletic improvement and success in the presence of a debilitating neurological disorder. Furthermore, athletic achievement is possible in the absence of athletic genes.

My experience and research have enlightened me to blog about peripheral nerve hyper-excitation (PNH) disorders. My blog post “The Misconceptions of Benign Fasciculation Syndrome” has produced over 150 thousand reads. Other blog posts I have written on the subject have received thousands of reads. Several years back I also participated in a forum on paresthesia symptoms on a Huffington Post webcast. I am not a doctor and do not hold a PhD in any educational field (I have a B.S. in electrical engineering). None the less, I have had several doctors stricken with PNH reach out to me asking for my advice. For instance, I sent the section on “Fear” to one doctor suffering from PNH and he wrote me back saying “The Fear component of the book is fabulous”. My communication with patients, my independent research for this text, my blogs, and my survey have provided me a clearer picture of what is going on but I am certainly no expert (I may know more than most, but no one is an expert). At the same time, I can speculate with more certainty about what is going on with me. As far as expertise in cycling is concerned, I have been competing in cycling the past 7 years and have been on the podium in over 100 races including national and state titles in time trial events. Yes, I have many cycling achievements, but what makes these accomplishments unique is that they were attained while I was battling two debilitating neurological conditions that impair both strength and power.

About the author

I authored two books, Moneysense and Defending Freedom of Contract. MoneySense is a book on personal finance and Defending Freedom of Contract is a book on Constitutional Law.

I have seen 9 neurologists over the past 13 years and my diagnosis has change 4 times. Currently my diagnosis is both cramp fasciculation syndrome (CFS) and chronic inflammatory demyelinating polyneuropathy (CIDP) or multifocal motor neuropathy (MMN). A definitive diagnosis has been difficult to pin point because my symptoms and diagnostic testing results do not fit any one disorder. My symptoms are vast and include motor, sensory, and autonomic nerves.

My neurological condition forced me to evolve to cycling 7 years ago after other activities were deemed a safety concern (rock climbing) or too painful (running). I participated in my first race at age 50 and have since won over 70 races and been on the podium over 100 times despite significant muscle power impairment.

Insurance Companies (BCBS) Playing God

As some may be aware of, I suffer from a neurological disorder. I have been through a cluster of tests over the past 12 years, seen 10 neurologists, and had my diagnosis change 3 times. In short, nobody is sure what is going on. To cut to the chase, my latest neurologist has diagnosed me with some unidentified sensory, motor, and autonomic neuropathy. She also believes that it is also possible that I may have cramp fasciculation syndrome (CFS), my previous diagnosis, but she is not sure. The crux of the problem is that my symptoms do not fit in any one bucket of disorders making diagnosis and differential diagnosis very difficult. Needless to say it is a very frustrating process and my next book will describe my ordeal and how I have tried to make the most out of bad situation.

My third EMG was positive for various types of issues including evidence of demyelination, axonal damage, and motor unit denervation. All are very serious nerve dysfunctions. Demyelination types of disorder at the peripheral nerves (Not the central nervous system, such as MS) are usually the result of some type of autoimmune attack. If true, immunoglobulin replacement therapy may help heal demyelinated nerve fibers and possibly over time some axonal nerve fiber damage. However, Blue Cross, Blue Shield (BCBS) rejected my insurance claim for the expensive treatment. Sure, there is a good chance the treatment may not help at all. But BCBS or any insurance company should not be in the business of playing God. If there is a remote chance it can help, they should grant the treatment. After all, it is a person's life we are talking about. You hear horror stories of insurance companies denying expensive cancer treatments to patients all the time because there is a high probability the treatment will not work, but there is a chance it could work and save a life. Insurance companies are there to help people, not to deny them service. And if we get socialist running the nation this problem will only get worse.

BCBS may think they are saving a few bucks, but are they saving society money? When insurance is denied that may help people then that cost is merely passed along down the road. If I felt better, I would not need to see the neurologist as much or have to continue to try other treatment methods (that do not cure, only treat the symptoms). When people are forced on the disability payrolls it costs the government and other institutions tens of thousands of dollars in costs and productivity. In other words, these decisions will cost BCBS in the long run as well as strain our already disability services.

Right now, I am waiting on my doctor who is protesting and challenging the insurance companies denial of service.